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Posts tagged muscular dystrophy
The Mobility Roadshow – last chance to enter our photography competition!
Oct 10th
Mobility Choice, the charity behind the Mobility Roadshow, and The Disabled Photographers’ Society have joined forces on this new competition with the theme On the Move.
If you are disabled and a keen photographer, there’s just a few days to go to enter our competition and be in with a chance to have YOUR photographs displayed at an exhibition in London.
Mobility Choice, the charity behind the Mobility Roadshow, and The Disabled Photographers’ Society have joined forces on this new competition with the theme On the Move.
Entries are invited in three age categories – under 12s, 12-18 and over 18. Prizes include a Merlin Annual Pass for a disabled person and carer, which provides entry to a range of top UK attractions such as LEGOLAND Windsor and Madame Tussauds for 12 months, plus Calumet photographic accessories.
But hurry – the competition closes this Saturday, 15th October 2011.
Shortlisted and winning entries will be exhibited at Calumet Photographic near Euston Station in London for four weeks from 7th January 2012, with the prize giving ceremony at the same venue on 11th January.
Entry forms, terms and conditions are available at www.mobilitychoice.org.uk andwww.disabledphotographers.co.uk
Good luck!
Worthing children get on their bikes for Ollie
Oct 6th
A GROUP of children have organised their own sponsored bike ride to raise money for a new Etac Balder powerchair for Ollie Pink who cannot walk.
A GROUP of children have organised their own sponsored bike ride to raise money for a new wheelchair for a boy who cannot walk.
Ollie Pink was born with congenital muscular dystrophy, which causes muscle weakness and possible joint deformities. He has never been able to walk or stand and has used an electric wheelchair since he was four, which he has now outgrown. His mum Emma, of Offington Drive, said: “Ollie’s condition means he is very weak and can’t walk, so he uses a wheelchair to get around.
“When it was time to start talking about getting a new one, Ollie’s sister and cousins said they wanted to help to try raising some of the money.” Ollie, 10, needs a new Etac Balder wheelchair, which will cost £18,000. It will be capable of taking him to a standing position – something he cannot currently do – so he is at the same height as his friends, and can be used on all sorts of terrain.
“It will make a massive difference to Ollie’s life, but it costs an awful lot of money,” added Emma, 41.
Ollie’s sister Annabel, 13, her friend Tara Clarke, and Ollie’s cousins Harry Hartley, 14, and brother George, 13, are doing a sponsored bike ride to raise money for the wheelchair. They have organised the whole event themselves, and plan to cycle from Worthing to Brighton and back again on Saturday. Ollie’s aunt, Georgina Pickford, 32, of Westcourt Road, said: “I am so proud of my nephews, niece and Tara for coming up with the idea themselves, and being so thoughtful.”
Emma, Georgina, and their sister Vicky Hartley, mum of Harry and George, will be holding pit-stops with refreshments for the youngsters along their cycle route. They hope to raise £800 towards their £18,000 target, and are already planning other fund-raising activities.
Emma added: “Because the wheelchair costs so much, we are also submitting applications to charities in the hope they may be able to offer us some funds. “Ollie and his physiotherapist Hazel Blake have both sent letters to say why this wheelchair is so important.”
Hazel, a senior paediatric physiotherapist at Worthing Hospital’s child development centre, said: “Oliver is a very sociable and bright boy, and he is fiercely independent. As he is becoming older and wanting to be more independent he really requires a chair that is more versatile in its ability to position him at different surfaces in a variety of environments.”
To sponsor the children’s fund-raising bike ride, contact Emma by emailing: grpink@ntlworld.com.
SEVERELY INJURED EX-ENGLAND RUGBY STAR WITH ETAC BALDER POWERCHAIR LAUNCHES NEW BOOK
Oct 6th
Etac Balder powerchair owner Matt Hampson, ex-England U21 tight-head prop, has recently launched his autobiographical book ‘Engage’ written with Paul Kimmage which tells Matt's story before and after his life changing accident leaving him paralysed from the neck down.
Etac Balder powerchair owner Matt Hampson, ex-England U21 tight-head prop, has recently launched his autobiographical book ‘Engage’ written with Paul Kimmage which tells Matt’s story before and after his life changing accident leaving him paralysed from the neck down.
High profile Matt Hampson nicknamed ‘Hambo’, 26 from Leicestershire, is a remarkable and inspirational individual who was a rising star in English rugby. Following his exceptional rugby performances at Syston RFC, he was selected by the Leicester Tigers Academy and continued to build upon his sporting prowess whilst juggling educational commitments at Queen Elizabeth College. During this time he trained alongside the likes of Austin Healey, Neil Back, Martin Cory and England World Cup winning Captain, Martin Johnson.
He then progressed to playing for his country and achieved several under 19 caps and eventually became the first choice prop for the under 21’s alongside other fellow stars such as Toby Flood, James Haskell and Ben Foden. However during a routine training session on the 15th of March 2005, Matt sustained a neck injury following a scrum collapse that would change his life forever. Matt explains: “It was a cold grey day at a Northampton training ground and we were training hard as normal. During the session we set up a scrum and were given the command to ‘engage’. The scrum came together however both teams collapsed and I took the full force of both packs on my neck, which left me unable to breath or feel my arms or legs. Following this freak accident, I spent over 17 months recovering in Stoke Mandeville Hospital before I was well enough to return home as amongst many other issues I had to beat Clostridium difficile and confirm my ability to swallow. Without my family and friends I would never have made it”.
Now six and half years since his accident, Matt has rebuilt his life and is busy with many worthwhile causes which include his charity work, writing for Rugby World Magazine and coaching at Oakham school. Throughout all of his day-to-day work he is fully dependent on a team of ten carers and his Etac Balder F280 powerchair, which delivers mobility, comfort and the ability to travel in an accessible vehicle via its Automatic tie-down system. Matt controls his powerchair with a sensitive mini-joystick operated by his chin and his ventilator is neatly attached to the rear of the seat. The Etac Balder F280 is a Scandinavian-built, hi-tech electric powerchair that leads the market place in terms of functionality, reliability and flexibility whilst providing superb manoeuvrability through front wheel drive and a battery range of up to 34km on one charge.
Matt continues: “The Matt Hampson Foundation which we set up in early 2011 takes up the majority of my time however I am able to continue my passion for rugby through my coaching which i feel is the next best thing to playing. My Etac Balder has really good traction and power, hence I can comfortably drive onto muddy training pitches without the worry of getting stuck which really helps with being close to the action. Off the field, my foundation is committed to inspiring and supporting young people seriously injured through sport and I am glad to say we have already raised a substantial amount of money. In addition to the numerous high profile charity events and dinners we organise throughout the year, my new book ‘Engage’ and patrons such as my old team mate Martin Johnson, are helping to raise awareness and funds for injured young sportsmen and women. Writing the book with Paul over the past four years has been emotionally draining for me however the response I have received from people since the launch has been absolutely amazing. My recent interviews on national television and the serialisation of my new book in the Sunday Times has really helped raise awareness of my foundation. Knowing I have the support of so many people locally and nationally really helps motivate me on a daily basis and I fully believe in remaining positive. My rugby training taught me respect, discipline and control, which has given me the mental strength to tackle my new life and help as many people as possible along the way.”
Matt concludes: “My Etac Balder powerchair is a fantastic piece of kit and I am keen to help Etac with product development in the future, as I am always willing to pass on my experiences and knowledge that i have gained through living the last 6 and a half years of my life. Meeting people through my Foundation with similar disabilities to myself, inspires me and helps keep my life moving forward. I always will feel proud and privileged to have played rugby alongside so many stars who currently play for our country.”
Ian Carter, Etac Managing Director added: “Matt is a truly exceptional character and to show this continued grit and determination, which is clearly demonstrated in his book, is very inspiring. We wish him every success with his charity work and feel sure that his Etac Balder F280 will continue to meet his mobility needs now and in the future.”
The Matt Hampson Foundation can be found at: www.matthampsonfoundation.org
Etac has been a world-leading Scandinavian healthcare specialist for over three decades. Its level of personalised care and after sales support is renowned worldwide. With its UK division based in Hook, Hampshire, Etac designs, manufactures and supplies high quality assistive devices which improve the daily lives of tens of thousands of people worldwide.
Follow Etac UK on Twitter: @etacuk
Etac E890 powerchairs transform lives of Manchester family not once but twice
Sep 20th
Zabiha Yasin (left) and younger sister Maliha (right) pictured at home in their recently delivered Etac E890 powerchairs.
For 18 year old Zabiha Yasin and her 14 year old sister Maliha from Whalley Range, Manchester, who both have the relatively little known condition Leukodystrophy, life has changed quite dramatically since receiving their Etac E890 standing capability powerchairs back in June of this year.
Up until the summer with their standard issue NHS powerchairs, everyday life for the sisters whether that be that at home, school or college presented a good many physical challenges for them and their parents Amjid and Asima Yasin. Diagnosed with Leukodystrophy, a rare group of genetic disorders that affect the white matter of the brain during their earlier childhood, both girls previously relied heavily on the support of their parents and carers to remain mobile. However now that Zabiha and Maliha have their high-tech multi-functional Etac E890 powerchairs, which amongst other things enable them to stand completely upright and achieve far greater levels of independent mobility; their lifestyles have improved beyond measure.
As Mr Amjid Yasin, the girls’ father explains, this extraordinary story began two years ago. Francis House, a local Children’s Hospice providing care for children with life limiting conditions, approached the Caudwell Children’s Trust on the family’s behalf to arrange a fully funded trip to Florida in November 2009. Shortly after this fabulous holiday and having met with Caudwell Trust Chief Executive Trudi Beswick and her hardworking team, they were to receive an invitation to the Butterfly Ball. It was here that as well as attending with stars such as Peter Andre, Liz Hurley and music legend Sir Elton John, they were to meet remarkable 11-year-old Tilly Griffiths. Despite her Spinal Muscular Atrophy, Tilly is the inspiration behind fundraising in excess of £2 million for Caudwell Children.
Impressed by Tilly’s Etac Balder powerchair and its dazzling array of features, the family were encouraged by her mother, Jackie, to apply to the Caudwell Trust in order to receive funding for similar powered wheelchairs for Zabiha and Maliha. Mr Yasin comments: “I could not believe how quick this whole process was. It literally took a matter of weeks from submission of our funding application, to approval of Etac’s quotations – some £44,000 in total for two powerchairs. What’s more, we were extremely impressed by the professionalism of Mike McConnell, Etac’s Sales Advisor. He was considerate and attentive to our daughters needs at all times, right from initial consultation all the way through to delivery and training on the chairs.”
Mr Yasin goes on to remark: “Once the girls had mastered the various controls on their new chairs, there was no stopping them. It was as if they were granted a new lease of life. Before they were quiet and withdrawn, worried they were too much trouble to be taken out, opting to stay indoors instead. Now they are happy to be taken or even go out by themselves. They seldom want to leave their chairs. In fact they are so pleased with them and find them so comfortable that sometimes they prefer to take their afternoon nap in them rather than go to bed!”
Thanks to the Etac E890’s tilt-in-space function and electrically elevated leg rests, both girls are now able to adjust their seat and leg positions at the simple flick of a switch without calling for assistance. As well as providing the girls with much needed around the clock comfort, the chairs’ unique standing capability alleviate the risk of pressures sores and circulatory problems. Now able to look everyone directly in the eye, it is perhaps this ability to stand upright that has had the biggest single impact on the sisters’ lives and the way they interact with those around them.
Amongst the other features that have made a difference, are the chairs’ front wheel drive and four separate speed settings. Zabiha for example, can often be seen now at the local athletics club, racing around the track with Dad lagging behind trying to keep up on his bicycle. Former British Wheelchair Dance Champion Maliha on the other hand, is especially pleased with the E890’s seat raise and lower function. She is now able to access all the ingredients she needs in the kitchen unaided so she can go about preparing such favourite family dishes as pasta salad, scones and cheesecake.
“Over the moon” as Zabiha describes how she felt the day her Etac E890 powerchair arrived, the Yasin family are incredibly grateful to both Caudwell and Etac for funding and supplying their daughters’ life-changing wheelchairs. In typical unselfish style, Mr Yasin, says: “It was quite by accident that we came to discover Etac powerchairs and the generous funding available from charities such as the Caudwell Trust. I’m sure there are many more families out there, who just like us, are making do with basic NHS wheelchairs but whose lives would be similarly transformed if only they knew about these wonderful Etac powerchairs.”
Etac to present their world-class powerchair collection at Naidex South 2011
Sep 6th
Etac UK Limited will be demonstrating their world-leading powerchairs from stand F12 to the trade, healthcare professionals and members of the public when they exhibit at Naidex South 2011 being held at ExCeL, London on 19–20 October.
Etac UK Limited will be demonstrating their world-leading powerchairs from stand F12 to the trade, healthcare professionals and members of the public when they exhibit at Naidex South 2011 being held at ExCeL, London on 19–20 October.
A long time supporter of Naidex, Etac UK’s Managing Director, Ian Carter regards Emap’s southern based show as the perfect platform from which to showcase their pioneering range of powerchairs to London and South East markets. Ian remarks: “Having generated considerable interest and excitement when we launched the Etac E870 and E875 at Birmingham’s NEC back in April of this year, the decision to book a stand for Naidex South at ExCeL in order to repeat this success was a simple one. Anyone visiting our stand will be spoilt for choice. In addition to the E800 series, we plan to exhibit the complete adult and junior Etac Balder Finesse range along with the Etac Balder XP.”
Included amongst the comprehensive line-up of powerchairs, features and accessories that can be seen on stand F12 this year are the following –
NEW Etac E870 and E875 Powerchairs
New for this year, the Etac E870 and its counterpart E875 (for heavier users) make ideal powerchairs for those users who prefer a flexible entry model that can be upgraded. Taking ergonomic mobility and functionality to the next level, the E870 and E875 encompass a number of key design features that deliver the less able individual a significantly improved daily living experience. There is no question that the Scandinavian specialists from Etac have developed these powerchairs purely with the end user in mind. The E870 (maximum user capacity 120kg) and E875 (maximum user capacity 150kg) offer whisper-quiet positioning, ultra-stable front wheel drive for optimum manoeuvrability, electrically adjustable leg rests, and tilting, raising and lowering of the seat. All these features not only offer improved daily mobility, but deliver assistance with countless medical conditions relating to pressure and circulation management.
Furthermore the E870 and E875 have powerful long life batteries that will last up to 50km and deliver a top speed of 9.9km/h, making it the perfect powerchair to venture outside as well as in. As with all models in the Etac E800 series, the E870/E875 come with a wide range of accessories. These include a pommel, rucksack/bag hooks, fold away tray, thoracic pads, knee pads and an emergency stop switch, providing the user with an even greater sense of freedom and independence.
Etac E880 and E885 Powerchairs Launched in 2010, the cutting-edge E800 series represents a revolutionary breakthrough in powerchair design and takes ergonomic mobility and functionality to another level. Developed solely with the end user in mind, the E880 with its extensive positioning provides levels of flexibility and comfort never previously achieved by a powerchair.
The Etac E880 and its counterpart, the E885 (for heavier users) incorporate tilt-in-space, seat raise/lower, backwards/forwards seat slide and side transfer functions in one sleek design and are capable of carrying up to 120kg and 150kg respectively. Special design features include height adjustable
flip-up arm rests, controller with swing-away arm and an ergonomically improved pivot point closer to the hip to complement the natural movement of the body.
In addition both models offer whisper-quiet positioning, ultra-stable front wheel drive manoeuvrability and a level of control that is unsurpassed in the world today. With built-in intelligence from the onboard computer, the E880 can be specifically programmed to exactly match suit the needs of the individual and is available with an extensive range of accessories. Drive-from-wheelchair capability is also possible through the Etac Automatic Tie-down System.
Etac E890 and E895 Powerchairs Equipped with the same high levels of mobility, functionality and design as the Etac E880 and E885, the Etac E890 and E895 also include a standing capability. Assistive device technology, as pioneered by Scandinavian specialists, enables the user to stand up from either a lying or sitting position and once in a standing position drive the chair in a variety of environments.
Etac Balder F270 Powerchair Manufactured to the most exacting standards using only the very best components, Etac’s entry level powerchair, the Etac Balder F270 offers high level of versatility with the flexibility to upgrade. With an impressive range of functions which the market has come to expect of an Etac powerchair, the F270 bears the Scandinavian stamp of engineering excellence.
The Etac Balder F270 comes complete with front wheel drive for maximum manoeuvrability, easy seat adjustment from as low as 380mm to as high as 820mm, manually adjustable seat tilt and leg rests and at just 640mm wide will negotiate a standard household doorway with ease.
Etac Balder F280 Powerchair Developed by Etac’s design team, the F280 has an extensive range of movements and the highest levels of functionality both of which give the user an enhanced sense of independence. Whether it is sitting more comfortably at a table, reaching up high or bending down low, the F280 with its impressive onboard technology and high quality components has been carefully designed to empower the less able individual and make their day that little bit more complete and fulfilling.
The Etac Balder F280’s tilt-in-space movement enables the user to tilt back by up to 45° and forwards by 15° whilst remaining in the same seated position. Flip-up arm rests and a swing-away arm for the controller makes transferring in and out of the chair much easier. A generously upholstered and ergonomically designed seat makes this powerchair perfect for daily use. While a fully adjustable seat, back, foot and leg rests do everything possible to reduce friction and relieve pressure. Furthermore, optional anti-sheer movement ensures that whatever the seat angle, the user’s position is perfectly maintained.
Perfect for both indoor and outdoor use, the Etac Balder F280 has all the advanced features associated with a top of the range powerchair. For example, front wheel drive to make handling easier, and a choice of control systems for position, movement and speed. With a smooth and quiet ride, the F280’s batteries have sufficient power to take the user distances of up to 34km at speeds of up to 9.9km/h before they need recharging. The F280 comes with an optional range of different colours, seat fabrics and accessories.
Etac Balder F290 Powerchair Compact, highly manoeuvrable, and suitable for both indoor and outdoor use, the world leading, state-of-the-art Etac Balder F290 has a range of movements similar to the F280. However thanks to the latest in assistive device technology, it has the added advantage of allowing the user to stand up from either a lying or sitting position in one easy movement. Furthermore, once in a standing position it is possible to drive this chair around on flat even ground.
In addition to front wheel drive, the Etac Balder F290 is fitted with supporting chest strap and knee brace providing maximum safety and confidence whilst in the standing position. Supporting castors will only power down when the surface is level to ensure the user only stands when safe to do so. The F290 can also raise or lower users while sitting or lying from 380mm to a maximum height of 820mm.
Seat, back, foot and leg rests can all be adjusted independently whilst transferring is made simpler thanks to flip-up arm rests and a swing-away arm for the controller. With a maximum width of just 640mm it is possible to pass through standard household doors with ease. An optional range of colours, seat fabrics and accessories allow the less able individual to personalise the Etac Balder F290 to suit his or her own particular taste.
Etac Balder F270 Junior Powerchair
The entry model Balder F270 Junior offers all the advantages of an Etac designed powerchair whilst offering the flexibility to upgrade. The F270 Junior has all the functionality of the adult version but with a smaller seat system. It has a broad range of movement that allows the child to raise and lower their seat to any height that suits. With the use of a tool, it is possible to manually adjust the seat tilt and leg rests; whilst front wheel drive and the chairs exceptionally slim-line shape make for accurate manoeuvring. Thanks to a large selection of features and accessories the F270 Junior can be customised to make this product feel special and completely individual for the younger wheelchair user.
Etac Balder F280 Junior Powerchair Equipped with all the same features as its adult counterpart, the Etac Balder F280 Junior allows young people to experience much more both inside and out. Furthermore, with its robust design the F280 Junior will easily withstand the wear and tear caused by most children or teenagers as they go about their day. The F280 Junior has a wide range of positions, making it the ideal chair for children as it allows them to sit as low as 380mm or as high as 820mm. It is also enables them to either lie flat or tilt backwards up to 45° or forward by as much as 15°.
Maximum comfort is assured at all times through independently adjustable seat, back, foot and leg rests. Such ease of adjustment means the chair can fully accommodate the changing needs and demands of a growing child. With puncture proof tyres, front wheel drive and a long life battery that lasts up to 34km the Etac Balder F280 Junior is incredibly reliable and perfectly well suited to the majority of outdoor excursions. Available in a choice of colours, the F280 Junior can also be fitted with a range of different accessories helping to make the life of a young wheelchair user more fun and fulfilling.
Etac Balder F290 Junior Powerchair Encompassing all the benefits of the adult model, the Etac Balder F290 Junior’s most striking feature is its movement from a sitting or lying to a standing position. As soon as the F290 Junior moves to the upright position, the supporting castors automatically lower but only when the surface is sufficiently level. This ensures that the child user can move safely while standing. A supporting chest strap and knee brace reassure the child and give additional confidence while in the standing position.
The F290 Junior can raise or lower a child as he or she sits or lies. This enables them to reach up higher or down closer to the ground, whilst at the same time, if they wish, tilting forwards and back into more comfortable positions. An ergonomically sculpted seat and back cushion helps to maintain body position and reduce the risk of friction and tissue damage.
As with the Etac Balder F280, the F290 Junior with its front wheel drive, puncture proof tyres, articulated rear axle and a battery life of up to 34km make it suitable for the even most intrepid explorers wishing to negotiate off-road activities and tricky manoeuvres over uneven terrain.
Etac Balder XP Powerchairs Ideally suited to the needs of the young user, the Etac Balder XP combines word-class reliability and flexibility along with robust engineering. Specialist ergonomic movement enables a child to sit as high as 860mm or as low as 460mm, relax in a tilt-in-space position or recline up to 30°.
The XP offers unsurpassed seating flexibility, postural support and day long comfort, all essential for healthy, happy living. It encompasses a R82 x:panda seating system with an extensive array of ergonomic features such an angle adjustable back rest, a multi-adjustable seat and a uniquely positioned hip pivot point to minimise skin sheering.
Suitable for children from 18 months to their teenage years, the XP is a completely versatile powerchair which has been specially designed to adapt and grow with its owner. A wide range of accessories and a choice of funky colours and graphics, make the XP the powerchair of choice for the younger user.
Automatic Tie-Down System Unique to the E800 and Etac Balder ranges including the XP; the automatic tie-down system affords wheelchair users much greater safety when travelling in adapted vehicles, whether they are passengers or drivers.
Successfully tested to ISO 7176-19 standard by the UK Road Transport Laboratory, the tie-down system uses the power of the chair to operate a securing mechanism which is then locked on to an anchor point on the vehicle’s floor. This anchor point is easy to install and doesn’t require any extra wiring or electrics. Reverting back to the original vehicle seat isn’t a problem either. With the help of an Undercarriage System, the seat can quickly be refitted.
NHS Hertfordshire Wheelchair Services fail severely disabled powerchair footballer Jack Morrell
Aug 4th
Jack Morrell, 17 from Hemel Hempstead, is a remarkable young man with Duchenne Muscular Dystrophy who plays for the Aspire powerchair football team and is completely dependent on his Etac Balder powerchair.
Jack Morrell, 17 from Hemel Hempstead, is a remarkable young man with Duchenne Muscular Dystrophy who plays for the Aspire powerchair football team and is completely dependent on his Etac Balder powerchair. However tirelessly his family campaign for funds to keep his powerchair in use, the support of NHS Hertfordshire Wheelchair Services continues to be inadequate and fail the needs of Jack and his family.
Duchenne is a progressive, muscle wasting and life limiting condition that has affected Jack from a very early age. Over five years ago Jack and his family discovered the remarkable Scandinavian-built Etac Balder F290 powerchair at The Mobility Roadshow. This F290 powerchair is a hi-tech, specialist electric wheelchair that encompasses a sit-to-stand function so individuals such as Jack can be assisted to a standing position even if their mobility is severely restricted. Jack’s Father Phil Morrell explains: “When I saw Jack stand for the first time in five years it brought tears to my eyes. As soon as I saw the functionality of this Etac Balder powerchair and the range of its movement, I knew that this was just what my son needed. It would make all the difference to many aspects of his life including school, time with his friends and ultimately help reduce discomfort from sitting in the same position day in, day out. However NHS Hertfordshire Wheelchair Services were not prepared to fund this powerchair and Jack was provided with an extremely low-grade chair that had very little functionality and was simply not suitable. The Etac Balder powerchair would eliminate costs for his school in terms of special desk adaptions etc. and reduce health-related costs for the NHS with his improved circulation and posture. Nevertheless these factors were swept aside and hence Helen and I began a campaign to raise the necessary funds for Jack’s Etac Balder powerchair.”
During this time the Morrell family of five also had to cope with their Sandwich Shop business being destroyed by the major explosion at the Buncefield Oil Terminal in 2005. Following this disaster HRH Prince Charles visited the area in support of all the families and companies that had suffered losses during the huge fires that ensued. Phil continues: “2005 was a very difficult time for us as we had lost our income due to the disaster. We wrote to several national charities seeking funding for the powerchair but to no avail. Even so, under the leadership of my lovely wife, as I honestly shy away from the concept of accepting ‘charity’, we continued to organise events to raise money for Jack’s Etac Balder powerchair. My local community, friends and colleagues were absolutely amazing and we final reached our £17,000 total with the help of several local charities pledging money. It was at this point the well-known national charity Caudwell Children by sheer coincidence contacted use to say that they had already secured all the funds for Jack’s chair! I offered all the money back to Caudwell but in the end we accepted some of the funds for an additional rugged powerchair suitable for fulfilling Jack’s dream of playing powerchair football. This is the only competitive team sport my son will ever play and has made a remarkable difference to him so all the efforts of everyone I know could not be appreciated more.”
Even though he is busy with his sandwich business, Phil Morrell is now Chairman of the Aspire Powerchair Football Club based near Watford and devotes extensive time and resources to supporting the team. Jack and his Father will be flying over to Paris later next month to attend the Powerchair Football World Cup. Even though the sport is recognised by the Football Association, Phil is currently supporting a campaigning for the sport to become a Paralympic discipline, as there is no other event in existence for permanent users of powerchairs. This sport gives the Morrell family respite from the burden and worry of keeping all Jack’s specialist equipment operational, which can be very expensive.
Phil concludes: “With regret, I feel really let down by NHS Wheelchair Services in so many respects. If I need someone to come and assess my son’s needs if he is in pain, it can take up to seven months to see a specialist. They won’t pay for adaptions or servicing to Jack’s Etac Balder powerchair as his condition changes and due to a ridiculous loophole in the current Road Traffic Act, our local NHS Wheelchair Service will not cover the maintenance of the chair as they class the 150kg wheelchair as a car! This issue is currently affecting many young adults who desperately need a powerchair such as those from Etac, however I read recently that there is to be a possible overhaul of children’s Wheelchair Services, which may increase efficiency through private sector investment. This is desperately needed as the tortuously slow process of dealing with the NHS in this sector commonly fails the needs of young less able individuals both in terms of time and solution provision.”
“Currently all I seem to hear are excuses and even though I do understand budgets have to be cut these days, surely several priorities are wrong when it comes to considering the welfare of young disabled people such as my son. He never complains and as a family we couldn’t be more proactive in researching and funding all the accessible adaptations valuing approximately £60,000 we have had to make at home, without any significant help from Hertfordshire NHS. Even when Jack had spinal surgery that resulted in him needing additional side supports on his powerchair, it took four months for Wheelchair Services to write back to me. Why is the system so complex and inefficient and they never even meet me halfway? If I talk to Etac for example, issues and concerns are resolved quickly and accurately. I get so frustrated as we could not make any more phone calls to help ourselves but still come up against brick walls with the NHS. I also know that as Jack turns 18, we will receive even less potential support from charities or the NHS which I’m sure is a major concern for many other families with less able members.”
Jack has recently completed his time at secondary school and is now in the process of applying for a provision driving license. Driving an adapted vehicle will be a real challenge for him but his condition, with the support of a loving family and his Etac Balder powerchair, has never stopped Jack striving for the most fulfilling life possible.
Etac experiences 30% increase in sales leads at the 2011 Mobility Roadshow
Jul 11th
Ian Carter, Etac UK Managing Director (left) with Matt James, Etac Product Specialist, experienced a 30% increase in sales leads at the 2011 Mobility Roadshow. They are pictured here with the revolutionary sit-to-stand Etac E890 powerchair.
Having successfully launched the E870 and E875, the latest models in their E800 powerchair range at Naidex National in April, Etac UK experienced an impressive increase in sales leads across their range on stand E16 at the recent 2011 Mobility Roadshow which was held at Peterborough’s East of England Showground, 30 June – 2 July.
Successfully capitalising on the momentum gained at Naidex National and the Kidz South exhibition more recently in June, Etac UK’s Managing Director, Ian Carter commented at the Roadshow: “The Mobility Roadshow has always traditionally been a solid platform for us to showcase our world-leading Scandinavian range direct to the end user. As the expenses associated with travelling to exhibitions continue to increase, it was pleasing to still see and meet so many visitors to our stand, which must be testament to the diversity of the Roadshow’s features and the quality of our products. Since their launch at the NEC the E870 and E875 have already proved a popular choice with end users, however it was other models from the Etac E800 and Etac Balder ranges which generated the increase in leads this year.”
Ian continued: “Visitors were particularly interested in the standing function of the E890 powerchair which does indeed take ergonomic functionality to another level. The Roadshow once again offered a fantastic opportunity for wheelchair users to see the outstanding range of movement and functionality in operation. As economic uncertainty continues to affect personal budgets, individuals are increasingly investment conscious and will only choose a specialist powerchair supplied by a proven name. Etac has been at the cutting-edge of assistive device technology for decades and I believe our success at the Roadshow reflects a continued trend towards us becoming first choice in specialist powerchair provision.”
On Stand E16, Etac showcased a selection of Adult and Junior powerchairs from the established Etac Balder range and the Etac E800 series, the latter of which launched in 2010. Amongst the paediatric powerchairs on display, the specialist XP model was demonstrated to many visitors which combines the reliability of the Balder chassis and drive system with an advanced R82 X:Panda sitting system. This delivers one of the highest levels of adaptability on the market with a fully adjustable seat, which can be adjusted to suit the specific needs of a wide variety of children. With intelligent, ergonomic design, the Etac Balder XP represents and significant development in mobility for severely disabled minors aged 18 months to early teens.
Launched in 2010, the cutting-edge E800 series represents a revolutionary breakthrough in powerchair design. The Etac E890 and its counterpart, the E895 (for heavier users) incorporate a sit to stand function, seat raise/lower, backwards/forwards seat slide and side transfer functions in one sleek design and are capable of carrying up to 120kg and 150kg respectively. Special design features include height adjustable flip-up arm rests, controller with swing-away arm and an ergonomically improved pivot point closer to the hip to complement the natural movement of the body.
In addition both models offer whisper-quiet positioning, ultra-stable front-wheel-drive manoeuvrability and a level of control that is unsurpassed in the world today. With built-in intelligence from the on-board computer, the E890 can be specifically programmed to suit the needs of the individual and is available with an extensive range of accessories. Drive-from-wheelchair capability is also possible through the Etac Automatic Tie-down System.
Ian concluded: “In the past 12 months, the company has undertaken a number of enhancements to our service and we will continue to develop the UK business so that product innovation, personalised after-sales support and service provision is of the highest standard. Furthermore, new state-of-the-art Etac powerchairs continue to be developed by our Scandinavian experts and the UK team and myself, look forward to sharing these exciting innovations with the market soon.”
ETAC TO DEBUT TWO NEW CUTTING-EDGE SCANDINAVIAN POWERCHAIRS AT MOBILITY ROADSHOW
Jun 17th
Ian Carter Managing Director of Etac UK outside his premises in Hampshire, with the revolutionary E870 powerchair.
Having successfully launched the E870 and E875, the latest models in their E800 powerchair range at Naidex National in April, Etac UK plan to showcase both products once more from stand E16 at The Mobility Roadshow 2011 being held at Peterborough’s East of England Show Ground, 30 June – 2 July.
Aiming to capitalise on the already considerable interest these world leading, state-of-the-art powerchairs have already attracted, Etac UK’s Managing Director, Ian Carter comments: “It’s been just a few weeks since we unveiled the E870 and E875 and we have already completed a significant number of product demonstrations. While our detailed and thorough assessments can lead to a fairly lengthy procurement process, my sales team are confident that we will generate many new sales. I have no reason to believe that The Mobility Roadshow, with its high number of wheelchair users eager to see the very latest products, will be any different.”
The Etac E870 and its counterpart the E875 (for heavier users) make ideal powerchairs for those users who prefer a flexible entry model that can be upgraded. Taking ergonomic mobility and functionality to the next level, the E870 and E875 encompass a number of key design features that deliver the less able individual a significantly improved daily living experience.
There is no question that the Scandinavian specialists from Etac have developed these powerchairs with the end user in mind. The E870 (maximum user capacity 120kg) and E875 (maximum user capacity 150kg) offer whisper-quiet positioning, ultra-stable front wheel drive for optimum manoeuvrability, electrically adjustable leg rests, and tilt, raise and lower seat options. All these features not only offer improved daily mobility, but deliver assistance with countless medical conditions relating to pressure and circulation management.
Furthermore the E870 and E875 have powerful long life batteries that will last up to 50km and deliver a top speed of 9.9km/h, making it the perfect powerchair to venture outside as well as in. As with all models in the Etac E800 series, the E870 and E875 come with a wide range of accessories. These include a pommel, rucksack/bag hooks, fold away tray, thoracic pads, knee pads and an emergency stop switch, providing the user with an even greater sense of freedom and independence.
11-year-old disabled Cameron denied life changing Etac Balder powerchair due to out-dated law
May 24th
LEFT: The Etac Balder F290J specialist sit-to-stand powerchair that 11-year-old disabled Cameron desperately needs. RIGHT: Cameron with his parents Rob and Karen Coxall
Cameron Coxall from Shepperton, Middlesex, has Duchenne Muscular Dystrophy and even though his family have been promised charity funding for a technically advanced powerchair, he has been denied this life-changing opportunity due to the Road Traffic Act of 1988.
Duchenne Muscular Dystrophy is a life-limiting degenerative condition which affects muscle function and it is imperative that Cameron changes his current standard powerchair to a specialist sit-to-stand Etac Balder F290 for many medical reasons. The Newlife Foundation for Disabled Children based in Cannock, Staffordshire, which is one of the UK’s leading children charities, has already allocated a grant for the £17,000 Etac Balder F290 however due to the weight of the powerchair it cannot be purchased due to legal reasons. Scandinavian-built Etac Balder powerchairs have been successfully changing peoples’ lives worldwide for decades however as they weigh more than 150kg, which is common for these types of powerchair, they are not classed as ‘Invalid Carriages’ but ‘Cars’. This means Cameron is not allowed to operate one either inside his home or out until he is 17, which potentially could be too late to make a difference.
Robert Coxall, Cameron’s Dad explains: “I cannot emphasise enough how important it is that Cameron is allowed to receive his Etac Balder powerchair. As we simply couldn’t afford to purchase one from our own personal finances, we were overjoyed when Newlife allocated funding. We felt this was a major milestone in Cameron’s life and hence went on the search for the most suitable powerchair. We first saw the Etac Balder F290 at the Naidex National Exhibition in April and Cameron instantly knew this was the one for him. This excitement however soon turned to despair as we were informed of this ridiculous out-dated law that has prevented his dream coming true.”
Robert continues: “This powerchair would dramatically improve Cameron’s lifestyle and health, both at school and home especially with the ability to move himself to a standing position whenever he likes. This position is essential for maintaining regular circulation and correct growth development as he is at a critical stage. As we have two other younger sons, one also with Duchenne, the difference this Etac Balder powerchair would make to my family is immeasurable. I know both Etac UK and Newlife are in contact with the Parliamentary Under Secretary of State for Disabled People, Maria Miller MP, with a view to changing the law however there has been little progress so far. Surely Maria Miller and the Government can see that the law needs to be amended quickly so that young individuals like my son can enjoy the best out of life before it is too late.”
Ian Carter, Managing Director of Etac UK based in Hook who is ready to supply the specialist powerchair, is unfortunately fully aware of this legal issue that prevents so many young people using these products. Ian concluded: “Here at Etac UK we are doing all we can to help the Coxall family. We are aware that this is not an isolated case and that Cameron even has a friend at the same school that is also being denied a powerchair for the same reason. Clearly this reflects a nationwide issue and I, along with several potential Etac customers affected by this issue, would welcome the opportunity to discuss this with Maria Miller MP who also represents the constituency where I live. In light of the fact that life-changing powerchairs are being regularly denied to young teenagers with conditions that can deteriorate rapidly, I feel this issue should be treated as a priority.”
Muscle Help Foundation
Jun 8th
Working in the mobility industry for one of the leading mobility comparison websites, almost every other day I come across people who can best be described as an inspiration to everyone they meet.
Faced with debilitating illnesses, disability and mobility problems, these people are capable of doing more in a wheelchair or a hospital bed than most people can do with a fit and able body. It’s as though their spirit, faced with insurmountable challenges, rises up and seizes the challenge. And then some.
Step forward Michael McGrath.
Michael suffers from muscular dystrophy, a debilitating disease affecting 75,000 people in the UK. In fact muscular dystrophy is the biggest genetic killer of children in the world – it robs sufferers of their mobility, their independence and finally for those with the most severe type, their lives.
Affectionately known as the Chief Muscle Warrior and wheelchair bound, Michael co-founded the Muscle Help Foundation which provides amazing experiences designed for children and young people suffering from muscular dystrophy – experiences that a child or young adult will remember for the rest of their lives.
Something magical…..like that arranged for 12 year old petrol head and Ferrari enthusiast, Jordan Williams, who’s forever saying to his mother “Mum, you’re fired!”.
Jordan with Michael…….
When I asked Michael why he set up the foundation, he simply said, “I want more people to hear about what this disease does, how it destroys lives and how those living with it can still fulfil their dreams.”
He added, “I want to empower, inspire and motivate others to engage with this cause – it takes 10 muscles to smile, 12 to frown but only one to make a difference, something we try hard to do through our Muscle Dreams programme.”
In 2002 Michael himself led an expedition to the North Pole, an achievement he repeated two years later at the South Pole. And this is a man who at that time could only walk assisted; just 6 months ago, he lost his ability to walk entirely. Unbelievable.
Michael at the Pole itself…
The Muscle Warriors 10k fundraising event at Haileybury went down a treat last weekend (June 5th). Jodie Williams – the first girl to become World Youth Champion in both the 100 and 200 meter sprint – came along with her dad Richard in her capacity as an Ambassador for the Wells Sports Foundation.
Father and daughter came a very respectable 7th place in the Muscle Warriors Guinness World Record attempt in partnership with National Family Week’s Sport Day initiative. Did they get the World Record? You’ll have to visit the event website in the coming weeks to find out! Click here.
To end this post, all I’d say is that Michael McGrath must be one of the most inspiring individuals I’ve come across in any walk of life……our very best wishes from the entire team at Mobility Compare. If you’d like to help this charity deliver more Muscle Dreams, you can donate online by clicking here.
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